This video touches upon the reasoning as to why one family affected by DMD decided to take part in the FOR-DMD study. It features their experience at the University of Rochester Medical Center and shows scenes of them at one of their appointments. Additionally, Robert Griggs and Emma Ciafaloni talk from a clinical point of view about the importance of the study and the benefits of taking part.

Information for parents

The FOR-DMD study will compare three ways of giving corticosteroids to boys with DMD to determine which increases muscle strength the most, and which causes the fewest side effects.

Information for

The FOR-DMD study is an international, multi-centre study which will compare the benefits and side effects of the three most widely prescribed steroid treatments in children with Duchenne muscular dystrophy (DMD).

About the

A trial of different corticosteroid regimens in Duchenne muscular dystrophy and a call for patient partners.





Boy and dog

Just for boys…

Sometimes travelling and waiting around can become a little boring. To help, we have a few puzzles and activities you might want to complete.