Contact us

If you have questions that need to be addressed to the FOR-DMD study team then please use the appropriate contact from the list below. Please ensure that you make contact with the person who is most appropriate to deal with your query by checking the ‘Reason to Call’ column first.

All non-urgent contact can be made using the following email address for.dmd@ncl.ac.uk

Reason to Call
Contact details
If your question is about:

  • The study in general
  • The protocol
  • Day-to-day study operations
  • Pharmacovigilance (e.g. SAE, SAR reporting);

Chief Medical Coordinator: Michela Guglieri

Tel: + 44-191-222-7623
Mobile: +44-7807111192
e-mail: michela.guglieri@ncl.ac.uk

Trial Manager: Chris Speed
Tel: + 44-191-222-7623
Mobile: +44-7807106293
e-mail: chris.speed@ncl.ac.uk

Trial Administrator: Kim Hart
Tel: ++: 585 275 3767
e-mail: Kim_Hart@urmc.rochester.edu

If your question is about:

  • Drug delivery
Trial Manager: Chris Speed
Tel: + 44-191-222-7623
Mobile: +44-7807106293
e-mail: chris.speed@ncl.ac.uk
If your question is about:

  • Any medical concerns

Chief Medical Coordinator: Michela Guglieri
Tel: + 44-191-222-7623
Mobile: +44-7807111192
e-mail: michela.guglieri@ncl.ac.uk

Medical Monitor: Tracey Willis
Tel: +44 (0)1691404047
Mobile: +44-7854109013
Email: tracey.willis@rjah.nhs.uk

If your question is about urgent medical concerns

Chief Medical Coordinator: Michela Guglieri
Mobile: +44-7807111192
Tel: + 44-191-222-7623
e-mail: michela.guglieri@ncl.ac.uk

EU Study Principal Investigator: Kate Bushby, MD
Tel: + 44-191-222-7623
e-mail: kate.bushby@ncl.ac.uk

US & Canada Study Principal Investigator: Robert Griggs, MD
Tel: ++585-275-2559
e-mail: Robert_griggs@urmc.rochester.edu

Medical Monitor: Tracey Willis
Tel: +44 (0)1691404047
Mobile: +44-7854109013
e-mail: tracey.willis@rjah.nhs.uk

If your question is about eCRF questions or you need to report any eRDC data entry problems MSG-CC Help Desk
Tel: ++ 585-273-5582
e-mail: For-DMD-Help@URMC.rochester.edu
If you have problems with patient randomization & enrollment Director of Data Management: William Martens
Tel: ++ 585-275-2483
e-mail: Bill_Martens@urmc.rochester.edu
If you have any questions about administrative problems including

  • subcontract issues,
  • conflict of interest,
  • payments
Trial Administrator: Kim Hart
Tel: ++: 585 275 3767
e-mail: Kim_Hart@urmc.rochester.edu