This video touches upon the reasoning as to why one family affected by DMD decided to take part in the FOR-DMD study. It features their experience at the University of Rochester Medical Center and shows scenes of them at one of their appointments. Additionally, Robert Griggs and Emma Ciafaloni talk from a clinical point of view about the importance of the study and the benefits of taking part. |
Information for parentsThe FOR-DMD study will compare three ways of giving corticosteroids to boys with DMD to determine which increases muscle strength the most, and which causes the fewest side effects. |
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Just for boys…Sometimes travelling and waiting around can become a little boring. To help, we have a few puzzles and activities you might want to complete. |